top of page

Chapter 1

The Years Before

Perseverance-Producing Trials

2004 Mak's alopecia.jpg

Makannen's first shave

He was four years old. 

2002 - Mak 4 years old.JPG

Mak before hair loss

He was four years old. 

2009 Carbon Monoxide poisoning - March 2009 (3).JPG

Chatham in the hyperbaric chamber

He was eight years old

2009 Carbon Monoxide poisoning - March 2009 (2).JPG

An unplanned sleepover

March 2009

2013 Mak Sleeping (1)_edited.jpg

Mak on pew at church

One of the many places he was found sleeping

2015 Mak and his meds.jpg

His second full shave

Along with some of the many medications we tried. 

2015 Mak bald.jpg

Mak embracing his baldness

At a school costume party

2016 Jack abdominal surgery December 2016.jpg

Jack at the hospital

Discussing the need for surgery

518312011_10235322138048716_3100746871496961696_n.jpg

In the waiting room

Siblings waiting for Jack to come out of surgery

518286969_10235322135888662_753918788250789976_n.jpg

Waking up

Jack starting his week of hosptial recovery from abdominal surgery.

20161204_112653.jpg

Jack's recovery

Sibliings there for support

20161209_120924.jpg

Home

The start of Jack's home recovery

20180405_165802.jpg

Jack's first MRI

Meeting with the neurologist

20180424_173930.jpg

Sickly

He spent years barely functionin

20210729_105524.jpg

Jack's second MRI

Realizing it wasn't something benign.

bottom of page